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Our vision is a world without Alzheimer's

Advocate

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The Alzheimer’s Association invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.

Add your voice to ours — become an advocate today.

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Upcoming events

The Greater Indiana Chapter's 2011 Public Policy Platform has been approved by the Board.  Please e-mail Michael Sullivan at michael.sullivan@alz.org if you would like to receive a copy.

Our major legislative issue in the 2011 Indiana General Assembly was Uniform Adult Guardianship. House Bill 1055 passed the legislature and has been signed by Governor Mitch Daniels, with an effective date of 7/1/2011. 

The 2011 budget (House Bill 1001) maintained CHOICE funding at $48.8 million per year and did NOT limit mental health drugs (which included Alzheimer's drugs) under Medicaid.  Other bills of ineterst that passed are Senate Bill 331 (several Medicaid eligibility "lookback" provisons and requiring the Governor's Task Force on Alzheimer's Disease to create a State Plan); Senate Bill 461 (health care reform provisions); and Senate Bill 363 (criminal background checks for healthcare professioinals).

Bills are available at www.in.gov   Click on LEGISLATIVE in the right hand bottom corner.  Then click Bills & Resolutions; click Overview; and then insert the bill number to see the action and obtain a final copy of the passed bill

 

Governor Daniels Appoints Alzheimer's Disease Task Force

Governor Mitch Daniels re-commissioned the Governor's Task Force on Alzheimer's Disease and charged the Task Force with creating an Alzheimer's Disease State Plan.  The Task Force is comprised of ten individuals with personal and professional experience with the disease.  They are:

Stephen Adair     Dr. Cathy Schubert     Dr. Fred Unverzagt     Kathy Segrist    Jana Powell      

Dr. Anne Hake    Ellen Dunnigan   Scott Bevington   Michael Sullivan   Rosella Bennett

They will be joined by four members of the General Assembly, as well as state government personnel from the State Department of Health, Family & Social Services Administration, State Police, and several sub-groups comprised of representatives from long-term care, businesses, caregivers, individuals with the disease, emergency responders, etc.  The range of issues to be addressed includes, but is not limited to diagnostic services, early-stage and early-onset strategies, research, quality of care, workplace development, coverage of long term care services, and public safety and law enforcement issues.

The Task Force has developed a survey in order obtain statewide input.  The survey can be accessed at:   https://www.surveymonkey.com/s/HYCNDPG

Additionally, two public input sessions have been scheduled:   *August 23 (5:30-8:30 pm in Kachmann Auditorium, Lutheran Medical Building 2, 7910 West Jefferson, Fort Wayne) and *August 24 (5:30-7:30 pm in the Fellowship Hall, North United Methodist Church, 3808 North Meridian, Indianapolis).  Please e-mail Michael Sullivan at michael.sullivan@alz.org for a flyer.

What is an advocate?

Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.

As an advocate, you will:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.

Indiana advocacy

The Indiana General Assembly
This is the website for the Indiana General Assembly.

Indiana State Department of Health Nursing Home Report Card
This site rates all of the nursing homes in the state of Indiana.

Federal advocacy