Become an Advocate
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular updates about current legislative and public policy issues.
- Stay on top of policy and legislative issues through alerts and updates.
- Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
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Napa on the MOVE!
As you have all heard - President Obama signed The National Alzheimer’s Project Act into law on January 4 after unanimous passage in both the House and Senate. This could not have been done without the persistent work of Alzheimer’s advocates. More than 50,000 e-mails, nearly 10,000 phone calls and more than 1,000 meetings by the Alzheimer's Association and its advocates led us to this historic legislative victory for the Alzheimer community.
In a recent press release, Secretary of Health and Human Services Kathleen Sebelius has promised to implement NAPA ”swiftly and effectively” to enact the “aggressive and coordinated national strategy” outlined in NAPA. Many passionate letters sent by Alzheimer’s Association advocates last summer helped encourage her support. Find more NAPA information at the links below:
White House Blog Statement on NAPA
Alzheimer’s Association Statement on NAPA
Find out about the most recent NAPA updates:
Medicare Annual Wellness Visits
Under the Affordable Care Act (Health Care Reform law), Medicare will now pay for an annual wellness visit, which will include the creation of a personalized prevention plan and detection of possible cognitive impairment. This new benefit began on January 1, 2011. The Alzheimer's Association developed a fact sheet on this new Medicare benefit, which is available here.
Healthy People 2020
For the first time since its inception in 1979, the federal government's Healthy People report includes national health goals and objectives related to Alzheimer's disease and other dementias. The report — known as Healthy People 2020 — represents the nation's highest priorities for health promotion and disease prevention and is central to establishing measurable national public health goals for the coming decade at all levels of government and health care delivery systems.
Compassionate Allowance for Early Onset Alzheimer’s
In February 2010, the Social Security Administration announced that Early Onset Alzheimer’s will now be eligible for Compassionate Allowance, which means the ability to access social Security Disability Benefits. In its effort to improve and expedite the disability determination process, the Social Security Administration added early-onset Alzheimer’s disease to its Compassionate Allowances Initiative. The initiative identifies conditions that meet the standards for Social Security Disability Income and Supplemental Security Income (SSI). This is a tremendous win for people who are under 65 and working, who develop Alzheimer’s disease.
The Shriver Report, A Woman’s Nation takes on Alzheimer’s – this notable and outstanding document was produced by Maria Shriver as a special look at Women and Alzheimer’s disease.
For more information go to: http://www.alz.org/shriverreport/index.html