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Structural and Functional MRI in Autism and Asperger’s Disorder

Location: UCLA

The purpose of this study is to find out how the brain understands language and processes emotions. Specifically, we are investigating the differences in these abilities between children and teens with an autism spectrum disorder (ASD) and those that are typically developing through the use of MRI. We can see which brain areas are important for language and communication by having children perform tasks related to these abilities while taking pictures of their brain, and may show that in some children these regions do not work in the same way.



Quality of life of school-aged children with autism spectrum disorder: Factors that predict parents’ perspective

The proposed study will evaluate the quality of life of school-aged children with ASD as perceived by their parent. To address limitations of previous work, global and domain-specific quality of life, variation across domains, and variation in ratings by age and gender will be explored. Then, a bioecological model will be used to examine individual factors (i.e., ASD symptom severity, maladaptive behaviours, adaptive skills, and grit) and contextual factors (i.e., parent mental health, sibling type, school type, reciprocal friendship, and and leisure) expected to predict a higher quality of life. In addition, more complex relationships between individual and contextual factors and higher quality of life (i.e., mediation) will be examined.

Location: Online survey



Metacognitive Awareness in Children and Adolescents with Autism Spectrum Disorder

The primary objective of this research project is to assess metacognitive awareness (or the ability to think about and monitor one’s own thoughts) in higher-functioning children and adolescents with Autism Spectrum Disorder.

Location:  Hamilton, OH



SPARK: Simons (Foundation) Powering Autism Research for Knowledge
An online initiative designed to engage 50,000 people with autism and their families in autism research. Participants will have the opportunity to contribute a DNA saliva sample for analysis along with medical and behavioral information.

UD Autism Lab fNIRS Study
Our study aims to examine differences in brain activity during various play/functional skills using non-invasive, fNIRS technology. A cap with LED lights is placed on the participant's head as they play/move to record their brain activity.

The Impact of Online Computer Games on Mental Health: Parents of Primary School Children Aged 8 to 12
Deaf and hard of hearing children (DHH) and children with Autism Spectrum Disorder (ASD) have been identified as having relations challenges and difficulties and mental health difficulties due to the function of the disability. This research is intended to provide a better understanding of the role of online computer games in the relationships skills and mental health problems of children with ASD and DHH. Contrary to expectation, previous studies suggest Minecraft might be helpful; this study will test that idea. We are interested in the views of parents or guardians of children with hearing difficulties. You’re invited to participate if: Your child has been diagnosed hearing loss. For your participation, you will complete an online questionnaire (20 to 40 minutes). If you would like to know more, please click here and read the Participant Information Sheet.
Participants will be included in a prize selection of an iPad mini 2 Wi-Fi 32GB.
Location: online survey


Talking Parents Survey

Location: Online Survey

The purpose of this study is to identify the social and language- based concerns of parents of children who have language impairments.



Fetal Exposure to Neuroactive Drugs and Folate (FEND-Folate Study)

Location: Online Survey

What reduction in autism spectrum incidence might be observed if the population was entirely unexposed to antiepileptic drugs during gestation, compared with its current exposure pattern? Human outcomes from well-controlled behavioral, histological and epidemiological studies are needed to identify the risks that this class of psychoactive drugs may pose to the development of autism spectrum and other pervasive developmental disorders when they interact with the fetus in the prenatal environment. This survey is designed to generate a preliminary database with improved power for generating hypotheses regarding attributable risk of autism spectrum outcomes given an exposure to neuroactive medication during gestation.



Early Autism Risk Longitudinal Investigation (EARLI)

Location: Pennsylvania, New Jersey, Delaware, Maryland and California.

The EARLI Study aims to look at the causes of ASD from a biological and environmental perspective. The EARLI Study enrolls mothers of a child with an ASD at the start of a new pregnancy. The study follows mother and baby from early pregnancy until the new baby turns three years old collecting data in real time all along the way. Data is collected at clinic and home visits as well as at delivery. Families also complete questionnaires and assessments at home.



Brain Imaging of Intranasal Oxytocin Treatment in Autism

Location: Chapel Hill and Durham, NC

The ASPIRE team is currently conducting a research study involving children and adolescents (ages 10 - 17 years) with a diagnosis of an autism spectrum disorder. This study is looking at the effects of an investigational medication on the brain. Oxytocin (nasal spray) is thought to help with social behaviors. This study is looking specifically at the effects of oxytocin vs. placebo on various brain activities. Participants will receive either one dose of oxytocin or one dose of placebo (saline solution with no medicine) followed by brain scans and behavioral assessments.



Accessibility to Health Care Services for Children with Autism Spectrum Disorders

The study will examine accessibility to therapy services for children with autism on the west coast of Florida. Parents and caregivers of young children who live on the west coast of Florida are encouraged to complete a short survey which will take approximately 15 minutes to complete. The survey will either be emailed or mailed to the participants depending on their preference. Participants will have an opportunity to provide feedback to the researcher once the results of the study are analyzed.



Pursuing Happiness: An Investigation of Life Satisfaction in Youth with Autism Spectrum Disorder

According to Schalock’s (2004) Emerging Disability Paradigm, researchers have an obligation to study positive traits of individuals with disabilities, including strengths, contributors to life satisfaction, and interventions to improve quality of life. This study seeks to assess strengths (e.g., gratitude, optimism, etc.) and life satisfaction in adolescents with autism spectrum disorder. The results of this study will provide preliminary information regarding the reliability and validity of positive measures with this population, as well as yield important information regarding strengths and well-being for this population.

Location: Online survey 



The Experiences of Hispanic Families of Children with Autism Spectrum Disorder Regarding Physical Activity and Communication: A Qualitative Study

The purpose of this study is to explore the physical activity and communication experiences of hispanic families of children with Autism Spectrum Disorder in Miami-Dade County, FL

Location: Syracuse, NY, Syracuse University



Age-related memory changes in adults with autism spectrum disorder

Little is known about changes in cognitive functioning that occur as adults with ASD age. To better understand these changes the Memory and Aging Lab in the School of Psychology at Georgia Tech is using EEG signals to understand changes in memory and learning in adults with ASD across the lifespan. Participants are asked to complete a few neuro-psychological measures as well as a computer-based memory task while brain activity is measured using EEG. Results from this study will help us understand whether brain signals can be used to understand age-related changes in memory that may be unique in adults with ASD. Participants are compensated $15 per hour plus travel expenses. To learn more about this study please call the Memory and Aging lab at 404-385-3699 or email us at techmemorylab@psych.gatech.edu.

Location: Atlanta, GA 30332



Understanding Autism Service Preferences

We are looking for people with autism and their families to take an online survey about how you think and feel about different services you may have used.

Location:  Online Survey



The long-term effects of early behavioral intervention services for children with autism

The purpose of this study is to investigate the long-term effects of Applied Behavioral Analysis for children with autism ages 6-18. This study hopes to gain insight on how long the benefits of ABA lasts for children with autism. The study will examine autism severity, adaptive behaviors, and current school placement. Parents will be participants in this study.

Location: survey by telephone, mailed rating scales 



AAC Preferences: A Qualitative Study Reflecting Adult Consumers

A limited number of research studies have assessed patient preference from a consumer’s point of view. Additional research is needed involving the user of the AAC device, as well as their family members in the decision making process (Baxter, Enderby, Evans & Judges, 2012). The gaps in the literature on preference from an adult consumer’s point of view motivate the aims of this qualitative study. An interview will be conducted based on interview questions that address gaps in the literature and will provide specific information related to consumer preference. The aims of this study are to provide adult perspective on AAC device preference and to investigate outcomes related to consumer involvement in AAC decision making.

Location: Online



A PHASE II MULTI-CENTER, RANDOMIZED, DOUBLEBLIND, 24-WEEK, 3-ARM, PARALLEL GROUP, PLACEBO-CONTROLLED STUDY TO INVESTIGATE THE EFFICACY AND SAFETY OF RO5285119 IN CHILDREN AND ADOLESCENTS AGE 5-17 WITH AUTISM SPECTRUM DISORDER (ASD)
The aviation study will assess an investigational medicine
for autism spectrum disorder (ASD). The study will test if an
investigational study drug can improve the social communication
and interaction skills of 5-to-17 year olds with ‘high-functioning’
ASD. The investigational study drug blocks a hormone receptor
in the brain that is linked to the control of socialization, stress,
anxiety, and aggression


Location: Cleveland, Ohio 



ONLINE SURVEY: Study on Autism Childhood Interventions
We are looking for both (1) autistic adults and (2) parents of autistic children to take an online survey related to childhood experience with no interventions, or interventions such as ABA (Applied Behavior Analysis) or no ABA at all

 

Location: Online Survey


The effect of gender and joining on the social skills of autistic individudals

The purpose of this study is to find out the effect that different therapies have on the social skills of children and adolescents with autism. More specifically this study will compare individuals who have been a part of a behavioral therapy such as ABA with individuals who have been a part of a play/relationship based therapy such as Son-Rise or Floor Time. Play/relationship based therapies often encourage therapists to join in the child's play thus the purpose of this study is to see how this joining in impacts the social abilities of autistic children and adolescents as compared to those whose therapy regimen does not include a play/relationship based therapy.

Location: Online survey 



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