The Perceptions of Parents and Practitioners on the Use and Effectiveness of PECS
We would like to find out more about what the perceptions of parents and practitioners who have children with autism regarding Picture Exchange Communication system (PECS). There are no right or wrong answers to the questions, just what you think. This survey will take about 15-20 minutes of your time, and we will use the results for a research study. We will not be able to identify you individually. Please do not put your name on this survey. If you would prefer not to answer a question, please leave it blank. Your participation is voluntary and you can stop at any time. Please submit the survey when you finish answering the questions.
This survey is targeting parents and practitioners (i.e., teachers, teaching assistants, speech language pathologists, clinic personnel, therapists, behavioral analyst) who have a child using PECS, or works with a child with autism or developmental disabilities whose facing communication difficulties and using PECS currently, or used PECS previously.
Location: Online Study
Brief Social Skills Training for Boys with Developmental Disabilities
Stanford University is looking for boys aged 8-18 with a developmental or intellectual disability to take part in a research study investigating behavioral training methods to improve duration of eye contact and social skills. Participation includes a visit to Stanford for 3-4 days, cognitive testing, two optional MRI scans, and social skills training with a behaviorist.
Location: Palo Alto, CA
Stanford University M3: Microbiome, Metabolites, and the Mind Project
The M3 Project, funded by NIH SBIR grant, aims to understand the connection between the bacteria in the gut and the autism phenome. All participation is completed at home and online! We are looking for families with two or more children, where one child has a medical diagnosis of autism spectrum disorder and is between 2-7 years old and another child, without an autism diagnosis, who is no more than two years apart in age of the first child. The study procedures include responding to an online behavioral and dietary survey, uploading a 3-minute home video, and collecting stool and saliva samples in the home from each child.
Location: Online Study
How Kids Talk
Researchers at Emerson College and Boston University are interested in how children with autism use pronouns and ask questions in their everyday speech. We are looking for parents of children with autism under the age of six to take part in our research, and even parents of children who are minimally verbal (those who speak in primarily one-to-two word phrases) are eligible to participate!
This study involves two short online surveys that can be taken from any location on a desktop or laptop computer. The first survey will take approximately 10 minutes to complete. Parents will receive the second part of the survey via email 1-2 days later. This will take 20-30 minutes to complete. If parents choose to provide your mailing address, as a token of appreciation, they will receive an $8 Amazon gift card.
Location: Online Survey
Parent and Teacher choices of Autism Treatments
My research team is conducting a project to determine how autism schools and parents are successfully treating people with autism. We are asking both teachers and to parents to fill out a questionnaire about autism treatments. We would have no direct contact with either the teachers or the parents and responses would be confidential. We hope that you will be able to help us to understand the quality interventions for people with autism in the United States.
Location: Online Survey
The PRETEND Intervention Study for Preschoolers with ASD
The Neurodevelopment Research Lab at CWRU is recruiting children, ages 3-6, with an autism diagnosis, and their parents to participate in an 8-week telehealth intervention program, delivered remotely via videoconferencing software. The intervention sessions focus on building pretend play, parent-child engagement, emotional understanding, and social communication while also decreasing problem behaviors. The study aims to better characterize social cognitive ability, the parent-child relationship, and oxytocin expression during the preschool years and in ASD. Participants will be asked to complete a baseline and post-intervention visit, which can be done in-home or at CWRU.
We are currently enrolling families in the Midwest region (Ohio and surrounding states). Further, there is no cost to participate and families will be compensated for engaging in the research program. Interested families are asked to email(email@example.com) or call (216 – 368 – 0112).
Location: In-Person, see details
Perceptions of the Effectiveness of Postsecondary Transition Programs for Student with ASD
With the increase in students with ASD entering postsecondary institutions, there are various colleges and universities who have established and support transition programs. Since many of these programs are in their initials stages of design and implementation, there is little data to support their effectiveness. Most of the information available focuses solely on high school systems and their ability to provide transitionary opportunities for students, thus effective research is lacking in the postsecondary context. Further development into the postsecondary environment is crucial in establishing and maintaining transition programs because it can potentially facilitate the expansion and sustainability of the development of programs, supports, and educator training to assure that all students with ASD have opportunities to be successful. Therefore, this study provides an extensive, exploratory investigation into the perceptions of the students with ASD.
National Study Invitation: Factors that Influence Success of Individuals with Autism
This is a national study exploring the perceptions of individuals with High Functioning Autism in assessing their understanding of their educational strategies, motivational factors, barriers to learning, and support for academic success in high school and college. Individuals with High Functioning Autism aged 15 years or older who are high school students, high school graduates, college students, or college graduates are invited to participate.
School Readiness in Children with Autism Spectrum Disorder
This study aims to examine behavioral and neurophysiological markers of executive functioning abilities as predictors of academic achievement in children with ASD. The participation in the research will involve one day visit to our clinic. The children will be tested for early literacy and math skills and executive functioning. You would receive up to 100 dollars per visit for participating, and also receive a feedback session with a licensed psychologist if needed.
Location: New York
Sex Education & Adolescents with Autism Spectrum Disorder:Parent & Teacher Attitudes & Effectiveness
It is hypothesized that parents and teachers who interact with adolescents with Autism Spectrum Disorder (ASD) will have more concerns and difficulties communicating with the individual about sex topics than parents and teachers with typically developing children. It is also hypothesized that parents will be more likely to cover in-depth topics about sex (e.g. relationships, sexual health and prevention, and general sexuality) while teachers will be likely to cover general topics about sex (e.g. privacy, sexual abuse prevention, puberty and hygiene, and basic relationships including family types and roles) with both typically developing students and students with ASD. The objective of the current study is to examine parent and teacher attitudes, and their effectiveness of communication, related to sex education with typically developing adolescents and adolescents with ASD.
Parental understandings of sleep problems in their child with autism spectrum disorder
I am a senior lecturer in the School of Health Sciences at the University of Canterbury. Myself, Associate Professor Karyn France, Dr Amarie Carnett, and Dr Sarah Hansen are interested in gathering information pertaining to parents understandings of their child’s sleep problems.
We are surveying the parents of children who have a formal diagnosis of autism spectrum disorder, and any type of sleep problem. If this is you, we would greatly appreciate you completing this 10-15 minute survey. The survey can be accessed by following this link: http://canterbury.qualtrics.com/jfe/form/SV_6RxLRkQFBKC0u7b
All responses to this survey will be completely anonymous, and do not require you to include any identifying information.
Examining Stress and Arousal Across Pubertal Development in ASD
The purpose of this study is to examine how social and emotional functioning and stress is impacted by pubertal development in individuals with an autism spectrum disorder (ASD). Your child is being asked to participate in this study either because he or she has autism or does not have autism, serving as a comparison participant. We will see how he/she responds to being evaluated by other people, including children of the same age. We will also see his/her biological responses to this social situations through salivary samples that will examine the hormones “cortisol” and “testosterone” and heart rate data collected from several sensors placed on the skin. We will also be examining daily fluctuations of salivary cortisol and salivary testosterone at various periods. The ultimate goal of this study is to help identify potential risk factors, treatment targets, and therapeutic strategies for developing children with ASD.
Location: Nashville, TN
Project Echo Research Application
We are studying voice samples from adult patients who have autism. We would
like to know if a short and random sample of speech (up to 1 minute) is a reliable and accurate screening tool for adult autism.
Participation will involve completing a short survey and recording a sample of you speaking for a few minutes. The survey and recording can be done at a local clinic in the Seattle area or from home and sent in through email.
If the study is done from home, an email address and access to the internet is required. The entire survey and speech sample recording should take 5-10 minutes.
After the first survey is successfully done, a follow up will be sent two weeks later. The follow up surveys are shorter, including a symptom severity questionnaire and another recording of your voice.
Parenting the Spectrum Study
The THRIVE lab at University of California, Irvine, has collaborated with the CARE Lab of Pomona College in Claremont, California and is running a program for parents of children with autism spectrum disorder between the ages of 3 to 7 years old.
The study is completed online, with the option (for participants living in Orange County) of conducting additional sessions in the home. During their involvement in the study, we will visit families in their home to complete a series of different surveys, a reflective activity and a few play tasks. Additionally, parents complete brief, online reflective activity on their own for three weeks. Mothers of typically developing children have reported finding the activity to be helpful in thinking
about positive, impactful moments in their everyday lives. Further, families will receive compensation for their participation.
Sensory Responses in Infants at Risk for ASD
The purpose of this study is to investigate how baby siblings of children with autism respond to sights, sounds, touch, and movement may help us understand early development and autism risk. Younger siblings will receive standardized developmental and language testing when they enter the study and at the follow-up visit. They will receive a psychological assessment for autism at the final visit, including a formal written report of testing results, recommendations and referrals, at no cost.
Location: Nashville, TN
SPARK: Simons (Foundation) Powering Autism Research for Knowledge
SPARK is on online autism
study with the goal of speeding up research and advancing the understanding of
autism. It is open to people of all ages with a professional diagnosis of
autism living in the United States. SPARK will enable advances in two major
ways. Having genetic samples from 50,000 families for scientists to analyze
will enable far deeper insight into the genetic changes that contribute to
autism. SPARK families will be available for a research match and to receive
invitations from researchers to participate in other studies. SPARK gives back
to families by providing monthly webinars on a variety of topics presented by
clinicians and researchers as well as summary and individualized results.
Early Autism Risk Longitudinal Investigation (EARLI)
Location: Pennsylvania, New Jersey, Delaware, Maryland and California.
The EARLI Study aims to look at the causes of ASD from a biological and environmental perspective. The EARLI Study enrolls mothers of a child with an ASD at the start of a new pregnancy. The study follows mother and baby from early pregnancy until the new baby turns three years old collecting data in real time all along the way. Data is collected at clinic and home visits as well as at delivery. Families also complete questionnaires and assessments at home.
Does the number of choices available affect the decision-making process for selecting autism treatments?
The purpose of this study is to determine how the number of choices presented affects decisions. Specifically, how it affects caregivers when they are attempting to choose autism treatments.
Open-label study to investigate the pharmacokinetics and safety of tasimelteon in children and adolescents
The purpose of this study is to determine an age-appropriate dose and assess safety/tolerability of a single dose of an investigational drug for children and adolescents ages 3-17 years old. The investigational drug is currently approved by the United States Food and Drug Administration (FDA) for another indication in adults.
Location: Baltimore, MD and Los Angeles, CA
Metacognitive Awareness in Children and Adolescents with Autism Spectrum Disorder
The primary objective of this research project is to assess metacognitive awareness (or the ability to think about and monitor one’s own thoughts) in higher-functioning children and adolescents with Autism Spectrum Disorder.
Location: Hamilton, OH