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Having a Sibling with Moderate to Severe ASD:Adolescent Perspectives of the Impact on Friendships

This study’s purpose is to understand the meaning and effect of the sibling relationship on friendships and to gain greater insight concerning how having a sibling with autism potentially affects friendships during adolescence. This is a dissertation study and is being conducted as the final requirement of the researcher's PhD program.

Location: Chicagoland area, Illinois (in person)

Perseverance Screening for Autism Spectrum Disorders in Infants to Facilitate Earlier Identification

We will use perseveration to distinguish high- and low-risk ASD groups. Visual perseveration involves looking to recently attended locations that are unlikely to provide new information. Core symptoms of autism such as repetitive motion, narrowed interests, and missed social cues could have their foundation in perseveration.

We will develop the perseverance task into a screening tool. While we will recruit infants who have an older sibling with ASD and compare them to infants without relatives with ASD, future application includes the ability to test any infant to determine if (s)he has increased perseveration and, therefore, needs full assessment.

This will reduce disparities in when children are diagnosed. The strongest predictor of age of diagnosis is socioeconomic status and having a tool that could screen all infants would reduce disparities so that less affluent families have access to the intervention and services earlier.

LOCATION: Provo, UT or St. Louis, MO

URL: or



Attitudes and self-efficacy beliefs of parents of children with Autism Spectrum Disorder regarding sexual health education

Parents are the primary educators for children about sexuality, even more so when the child has a disability (SIECUS, 2004; Wilkenberg & Ballan, 2011). Parents of adolescents with ASD are often unsure of “what, when, and how to tell their children about sex” (Nichols & Blakely-Smith, 2009). Communication between parents and children about sexual health is a known protective factor for delaying onset of sexual activity in typically developing children (Ballan, 2012). It is imperative to understand the knowledge level, personal values, and attitudes of these adults as it translates into providing sexual health education to children with ASD. It is well documented that withholding sex education from people with disabilities for any reason actually places them at increased risk for negative health outcomes (Groce, 2003; Deschaine, 2011). Results from this exploratory study will inform the direction and topical content of future interventions to improve education and confidence for parents.

Online Study

Accessibility to Health Care Services for Children with Autism Spectrum Disorders

The study will examine accessibility to therapy services for children with autism on the west coast of Florida. Parents and caregivers of young children who live on the west coast of Florida are encouraged to complete a short survey which will take approximately 15 minutes to complete. The survey will either be emailed or mailed to the participants depending on their preference. Participants will have an opportunity to provide feedback to the researcher once the results of the study are analyzed.

University of Delaware Autism Lab fNIRS Study
Our study aims to examine differences in brain activity during various play/functional skills using non-invasive, fNIRS technology. A cap with LED lights is placed on the participant's head as they play/move to record their brain activity.

We are a group at the Cleveland Clinic Neurological Institution looking for high-functioning individuals with autism spectrum disorder (ASD) and healthy volunteers to participate in a research study. Specifically, we are looking at how we can improve communication and social skills by training people to imagine themselves participating in social tasks. As a volunteer for our study, you will complete some questionnaires and tasks to get an idea of your baseline functioning, including some autism specific tests, EEGs, and MRI. These will be repeated after training to see if there was any change as a result of the training. Next, you will participate in six brain-training sessions at NASA Glenn Research Center. There, they have a room designed for virtual reality experiences that make you feel like you’re entirely surrounded/involved in the activities you’re watching (called the GRUVE lab). You can read about the GRUVE lab here:

Home Recordings of Infant Speech

Location: Atlanta, GA

The aim of this study is to track the development of spoken communication and social interaction over the first three years of life in typically developing infants and infants at risk of developing Autism Spectrum Disorders (ASD). By making audio recordings of a child’s home environment every month, we will be able to map out how children learn to speak, and how this process breaks down in autism. The results will help to identify early markers for autism, and may lead to better methods for early diagnosis and treatment for children with ASD.

Autism, Caregiving, and Behaviors Study

Location: Telephone Interview

The goal of this telephone interview is to assess general family functioning, responsibilities of family members, and perceptions of adolescent behavior in families who have a male child with autism. Additionally, this study aims to assess autism severity levels in children with autism using a new measure and to examine perception of adolescent behaviors.

Autism Research Studies in Speech and Language

Locations: Johns Hopkins Medical Institutions (Baltimore, Fells Point, New York)

This research is being done to better understand and improve communication, speech, language, behavior and related abilities of individuals with autism and related conditions. The study involves clinical and research tasks designed to measure and to try to improve skills that are fundamental to communication abilities. These may include perceptual (auditory and visual), motor, and conceptual skills and behavioral functions such as activities of daily living, attentiveness, and

Autism Genetics Network, Phase II: Increasing Representation in Human Diversity

Location: Bronx, NY

The study looks at the genetics of Autism, and issues surrounding diagnosis and access to care, in the African American population. African American children with Autism are vastly underrepresented in Autism research. We hope to help reduce this disparity and deepen our understanding of the genetic aspects of Autism in the African American population, in the hope that it will lead to earlier diagnosis and better treatment options.

Sensory Integration Therapy in Autism: Mechanisms and Effectiveness

Location: Bronx, NY

The study looks at the effectiveness of Sensory Integration Therapy (SIT) and Applied Behavior Analysis (ABA) on improving functional skills in children with Autism. Diagnostic assessments and neurophysiology research are also conducted, in the hopes of identifying therapeutic effects on Autism severity and brain functioning.

The Neurophysiology of Multisensory Speech Integration Across Development
The perception of speech is important for social communication and seeing the speaker is an important part of it. Seeing the speaker's face and lips can help us understand his or her message, especially when there is noise in the background. The process of putting together (or integrating) what we see and hear is called "multisensory integration". Multisensory integration is an ability that develops and improves throughout development.
The goal of this research project is to find out how the human brain manages to integrate what we see and hear and how this ability develops from childhood into adulthood. Another important goal is to find out if the brains of individuals on the Autism Spectrum integrate what they see and hear differently. Participants in this project will take part in experiments that measure brain activity while engaged in multisensory integration tasks. We will also conduct some psychological assessments and collect a saliva sample for genetic analysis.

Location:Bronx, NY 

Expressive Language Sampling Study for Individuals with Autism age 6-23
The purpose of the research is to better understand how the language the individuals with ASD use changes based on the speaking situation. We are interested in how an individual’s language is different when having a conversation, telling a story, or interacting with an adult. We also want to know how language used in these situations changes over time. In the future, it is possible that measures of spoken language production in one or more of these situations may be used to decide if a treatment is helping a child or adult to learn and use language more effectively.

Neurobehavioral Research on Infants at Risk for Language Delay and ASD

Despite tremendous advances being made in our understanding of autism spectrum disorder (ASD}, the average age of diagnosis of an ASD in the United States is >3 years of age, although in some cases a reliable diagnosis can be made as young as 18 months. Given the value of early intervention. it is imperative we identify children who will be diagnosed with an ASD as early in life as possible. Our goal is to find signs that suggest risk tor this disorder between infants with an older sibling with an autism spectrum disorder, typically developing infants, and those displaying developmental concern based on early differences detected on a screening tool

Experiences of college students with autism spectrum disorder: Successes, struggles, and needs

Brief Summary of Study’s Purpose: 

The purpose of the proposed study is to gain a better understanding of the experiences of university/college students with ASD. We aim to utilize this information to help better prepare these individuals for their transition to higher education, and to provide insight to schools, so they are aware of the types of services they should provide to improve the collegiate experiences of their students with ASD.

Eye-tracking Assessment of Passive Viewing in autism spectrum disorder (ASD)

Brief Summary of Study’s Purpose: The University of Georgia’s Child Attention and Autism Research/Evaluation (CAARE) Lab is conducting a study about social attention in children with autism spectrum disorder (ASD) and typically developing children. We are interested in examining how children with ASD and typically developing children attend to different types of pictures. If you agree to participate in the project, we will ask you to send us photos of people and objects your child is familiar with. Then we'll ask you to come to our lab for a one time visit that includes:

• Completing questionnaires about your child

• Children with ASD will complete some diagnostic activities with a researcher

• All children will also look at some pictures on a computer while we use an


We hope that the knowledge gained from this experiment will help to improve interventions targeting social attention in children with ASD in the future.

Examining the impact of collaborative team strategies on the generalization of communication skills

The purpose of this study is to determine the perceived effectiveness of four collaborative strategies-1) Use of Computer-mediated Communication, 2) Role of Para-Educators, 3) Peer Coaching and 4) Quality of IEP goals, objectives and descriptions- used by special education professional team members (special education teachers, speech and language pathologists, para-educators, general education teachers, administrators, parents), explore educators attitudes towards using Alternative and Augmentative Communication (AAC) devices and systems, and explore other strategies which potentially impact the generalization of communication skills for children with complex communication needs (CCN).

Online Survey;


Autism, Bilingualism, and Heritage Language Learning Research

The goals of the Autism & Heritage Language Research Lab at San Francisco State University are to understand the factors that affect heritage language maintenance in families of children with autism and to investigate whether children on the autism spectrum demonstrate unique needs when learning more than one language. We are currently conducting a study of heritage language maintenance among Chinese-speaking families of children on the autism spectrum in the United States.

Location:  Online, over the phone, or San Francisco Bay Area;

Genetics of Neurodevelopmental Conditions

The purpose of this study is to identify one or more genetic variants that may cause autism and other neurodevelopmental conditions.

Location:  limited to including families who reside in/around Iowa.

Multimodal imaging of early neural signature in autism spectrum disorder

We’re looking for families with 18-26 months old toddlers who have a (provisional) diagnosis of Autism Spectrum Disorder, or social and communication delays, to participate in a new research study of early brain development in San Diego, California. The goal of this NIH-funded brain imaging study project is to identify brain markers of risk for autism.

We will ask you to visit an MRI research center, where we can obtain images of your child's brain, while she or he is naturally asleep. The scans will take place late in the evenings when your child is usually asleep. MRI is non-invasive and completely safe, and can provide us with critical information about how your child's brain is developing at this critical period when autism symptoms first emerge (in comparison to children with no such diagnosis).

Location(s) where study is being conducted: San Diego, CA

URL where study information can be found:


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