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UMDF Advocacy In Action

  

 

                                       

   LEGISLATIVE UPDATE

                                  
                    

 

The United Mitochondrial Disease Foundation  works in your state and in Washington DC for the benefit of the entire affected community.   There are a number of ways that you can make your voice heard – NOW

 

Congressional Mitochondrial Disease Caucus Briefing
October 20, 2015

The United Mitochondrial Disease Foundation will host our 5th briefing before House Members and their staff.   This session will educate Congress about the connection between mitochondrial dysfunction and cardiac and heart issues.   Speaking at the briefing will be Edward Lesnefsky, MD.   Dr. Lesnefsky works primarily at McGuire V.A. Medical Center where he is Chief of Cardiology, but his activities include administration, basic research and clinical cardiology at both McGuire VA Hospital and at VCU Medical CenteR.  His current research interests include the study of myocardial cell death during heart attacks and their treatment.   the focus of his lab is the study of the role mitochondrial play in the progression of cardiac cell death during heart attacks and treatment.  Also speaking at the briefing will be  David Schubert, PhD., Vice President of Regulatory & Quality for Stealth Biotherapeutics.  Dr. Schubert will discuss the mitochondrial myopathy trial for Bendavia that Stealth has underway, and not only it’s implications for mitochondrial disease patients, but for cardiac patients in general.

Click here to send a letter to your Congressman asking him/her to attendthis very important briefing.

 

 

 


 


Thank you!

Adding your voice to these issues is critical so that we may continue to have legislation introduced and passed to make positive changes for the entire mitochondrial disease community! 


Thank you for taking action!  
Check back in the UMDF Advocacy Action Center often. 


United Mitochondrial Disease Foundation
8085 Saltsburg Road - Suite 201
Pittsburgh, PA 15239

888-317-UMDF (8633)

 

Come back to the UMDF Advocacy Action Center for more Action items that need your attention at www.umdf.org/advocate 

 


 

OUR MISSION:

To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.