Sign in to My HQ

About Our Chapter




The mission of The ALS Association Greater Philadelphia Chapter, is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association is the only national not-for-profit organization dedicated solely to the fight against amyotrophic lateral sclerosis. The Greater Philadelphia Chapter provides support and resources for ALS patients, their families, and caregivers living in the eastern half of Pennsylvania, southern New Jersey, and Delaware. We are proud to be the principal charity of the Philadelphia Phillies. The Chapter’s governing documents and policy statements are available upon request. Click here for more information.        


Patient Services

Money raised through the Walk to Defeat ALS® supports vital patient service programs to help improve the quality of life of those battling ALS. Our chapter's experienced team of care coordinators offers a variety of services for patients living with ALS and their families. Through patient care management, assistive technology, a medical equipment loan program, respite care, support groups, and multidisciplinary ALS clinics, we provide essential assistance for patients and their families at every stage of the disease.

On-going, in-home consultation and home assessments by patient service staff

* Mobility and home adaptation programs

* Durable medical equipment loan programs

* Speech evaluations and communication device programs

* Support groups for people with ALS, caregivers, families and survivors

Learn more about our Chapter's Patient Services resources

 

Research

MicroscopeYour involvement in the Walk to Defeat ALS® helps us fund cutting-edge research by the world's best and brightest scientists. The ALS Association directs the most comprehensive ALS research program ever organized and has committed more than $55 million in the quest to find a treatment and a cure. Because of the support of foundations, corporate partners, and individuals just like you, we can continue to make great strides toward the day when ALS is a disease of the past.  

* The ALS Association has a 20-year track record of heavy research investment.

* The organization spent $28.5 million on research in the last decade, $13.2 million of which was donated in the last three years.

* Over the next five years, The ALS Association has targeted $37 million for ALS research.

Learn more about exciting Research

Advocacy, Public Policy, and Awareness

Your support for the Walk to Defeat ALS® is making a difference across the country, including in our nation's capital, Washington, DC. That's because funds raised by the Walk enable us to tell the ALS story on Capitol Hill and enact policies that advance ALS research, expand access to care and improve the lives of people with ALS and their families nationwide. In fact, thanks to your support of the Walk, we have:

* Generated more than $650 million in government funding for ALS research over the past 10 years;

* Waived the 24-month Medicare waiting period for people with ALS,
the only time Congress has ever amended this law;

* Secured unprecented benefits for veterans with ALS and their survivors; and

* Enacted the ALS Registry Act to launch what may become the single largest ALS research project ever created.         

However, much more must be done in the fight against this horrific disease. So when you're at the Walk this year, please stop by the advocacy table and sign a letter to your elected officials urging them to support our top public policy priorities; to support people with ALS.

The Walk isn't your only opportunity to help. In less than two minutes, you can become an ALS Advocate and learn what you can do to make a difference throughout the year. Just visit the Advocacy Action Center of our website, and sign up today. By doing so, you can help increase funding for research, improve care and truly make a difference in the lives of everyone who has been touched by this disease. Sign up now! and together we can continue to create the roadmap that will lead us to a treatment and cure!

Learn more about our Advocacy Efforts

 

Help Files