FRR has grown to a membership of over 450 families. It is our hope that this conference will be our largest and offer the greatest opportunity for LCA families to come together.
This Conference is a unique opportunity to learn first hand the most current information on LCA directly from the researchers and doctors involved. You are encourage to bring your list of questions and your families lists of questions and get straight answers.
We will be offering medical exams, ERGs, retinal photographs and blood draws for gene identification through the
Childrens Hospital of Philadelphia.
The exams will be offered on Friday, July 20th, space is limited. You must fill out the medical request/blood draw form and return it with your registration form.
The conference itself will be held at the Inn at Penn Hotel. Please make your hotel reservations quickly as space is limited.
You can find the reservation link for the hotel on the FRR homepage. Or call toll free 1-800-445-8667 or 1-215-222-0200, be sure to mention you are making reservations for the "LCA Family Conference 2012" Group Code LCA for the conference rate.
Forms for Registration, Child Care and Medical Exam and Blood Draw are found on FRR website, follow the LCA Family Conference 2012 tab and click on registration forms or you can find the forms after you register on-line for the conference under additional forms.
Overbrook School for the Blind is offering Child care, forms must be filled out in there entirety and returned with registration forms.
This year there will not be a family outing. Saturday evening you can stay in at the hotel and relax or enjoy the historical city of Philadelphia on your own.
Hope to see you all in July!
Sally Lewinski, Executive Director, FRR